Kawasaki Disease Canada
Parent lead support group, creating awareness of KD in Canada. Includes a forum, KD information and a pamphlet.
http://www.kdcanada.ca
SIDS and Kids
National Australian body that funds research, promotes reduce the risk campaigns and provides bereavement support to families. Includes brochures to download and details of fund raising activities.
http://www.sidsandkids.org/
First Candle (previously SIDS Alliance)
National US charity. Offers research, tips for prevention, support for families, publications, and events.
http://www.firstcandle.org/
Canadian Foundation for the Study of Infant Deaths
Provides risk reduction information, research, peer support and local activities across Canada. Includes a memorial gallery, discussion forums and an online shop.
http://www.sidscanada.org/
The American Sudden Infant Death Syndrome Institute
National US non profit organization dedicated to the prevention of sudden infant death and the promotion of infant health.
http://www.sids.org/
Foundation for the Study of Infant Deaths (FSID)
UK charity providing information, bereavement support, fundraising, research grants and safe baby campaigns.
http://www.sids.org.uk/
International Society for the Study and Prevention of Infant Death (ISPID)
International body dedicated to the exchange of information among scientists with experience in the field of infant health and death.
http://www.ispid.org/
SIDS of Pennsylvania
Provide support to bereaved families, education and awareness and fund research.
http://www.sids-pa.org/
The Georgia SIDS Project
Aims to educate families and communities in Georgia on how to reduce the risks of infant death. Includes newsletters, research data and information on obtaining support.
http://www.sidsga.org/
University of Maryland - Center for Infant & Child Loss
Committed to increase the understanding of SIDS and other child deaths, risk reduction practices, grief, and compassionate intervention.
http://www.infantandchildloss.org/
SIDS Resources, Inc.
Offer bereavement support to Missouri families, fund research and promote education and awareness.
http://www.sidsresources.org/
Considering Alexander SIDS Foundation, Inc.
Exists to comfort and counsel families, raise awareness, disseminate risk reduction advice and promote and sponsor research into causes and prevention.
http://www.sidsfoundation.org/
Scottish Cot Death Trust
Scottish charity. Provides support and information on cot deaths, and commissions research.
http://www.sidscotland.org.uk
AHRQ: Breastfeeding and Maternal and Infant Health Outcomes in Developed Countries
Research showing a reduced risk of cot death and other childhood illnesses in breastfed babies. Paper downloadable in PDF format.
http://www.ahrq.gov/clinic/tp/brfouttp.htm
SidsAlliance.org: Toxic Gas Theory, Mattresses and SIDS
Summarises results from a number of studies into toxic gas theory, and concludes there is a lack of evidence to support the theory as a cause of SIDS.
http://www.sidsalliance.org/FC-PDF4/Research_Position%20Statements/toxic%20gas%20theor%E2%80%A6es%20and%20sid.pdf
BBC News: Lung flaw link to cot death risk
Research finding that babies born with specific variants of three key lung genes are 14 times more likely to die from cot death.
http://news.bbc.co.uk/1/hi/health/5278478.stm
Cot Life 2000
Discusses a theory that cot death is caused by toxic gases released from mattresses and offers suggestions for its prevention.
http://www.cotlife2000.co.nz/
ADC: Electromagnetic fields produced by incubators influence heart rate variability in newborns
Research demonstrating that incubator electromagnetic fields affects heart rate variability in newborn babies. Full paper is available in PDF for a fee.
http://fn.bmj.com/cgi/content/abstract/adc.2007.132738v2
FSID: Research background for the advice to reduce the risk of Cot Death
Discusses key recommendations to parents wanting to reduce the risk of cot death, and the research supporting these recommendations.
http://www.sids.org.uk/editpics/612-1.pdf
FSID: Infection and sudden unexpected death in infancy: a systematic retrospective case review
Research by Weber MA et al suggesting a possible link between bacterial infection and cot death.
http://www.sids.org.uk/sebire-infection.html
SIDS Calgary Society
Provides information, resources and support to parents, families, friends, and health care professionals. Based in Calgary, Alberta, Canada.
http://www.sidscalgary.ca/
Alliance for Infant Survival
Promotes healthy babies through SIDS education, advocacy, research. Supports families suffering the loss of an infant.
http://www.infantsurvival.org
SIDS Center of Indiana
First Candle affiliate. Provides support to bereaved families in Indiana and organises fundraising activities. Includes reduce the risk information.
http://www.insids.org
Iowa SIDS Foundation
Affiliate of First Candle. Offer bereavement support and information to families affected by SIDS in Iowa.
http://www.iowasids.org/
SIDS network of Kansas
A non-profit support organization to help those affected by the sudden death of an infant in Kansas. Advice, support meetings, information about SIDS, and links.
http://www.angelfire.com/ks/sidsnetworkofkansas/
MedlinePlus Medical Encyclopedia
Overview of diagnosis and treatment of biliary atresia.
http://www.nlm.nih.gov/medlineplus/ency/article/001145.htm
Biliary-atresia.com - New Clues from Etiology to Therapy
Current scientific research on this disease, including forum.
http://www.biliary-atresia.com/
Biliary Atresia Research Consortium (BARC)
Research group provides information for families about the liver, this disease, and current research. Includes glossary, common questions, and related links.
http://www.barcnetwork.org/
eMedicine- Biliary Atresia
Article by Steven Schwarz, MD on this disorder.
http://www.emedicine.com/ped/topic237.htm
Canadian Liver Foundation: Biliary Atresia
Information on this relatively rare disease includes symptoms, tests, treatments, and related health problems.
http://www.liver.ca/Liver_Disease/Childrens_Liver_Diseases/Biliary_Atresia.aspx
Pediatric Oncall
Patient information about biliary atresia, its causes, treatment and operative management.
http://www.pediatriconcall.com/forpatients/CommonChild/biliaryArt.asp
MedlinePlus
Diagnosis and treatment of necrotizing enterocolitis.
http://www.nlm.nih.gov/medlineplus/ency/article/001148.htm
eMedicine- Necrotizing Enterocolitis
Article by Shelley C Springer, MD, on this disorder that mainly affects premature babies.
http://www.emedicine.com/ped/topic2601.htm
Texas Pediatric Surgical Associates - Necrotizing Enterocolitis
Provides definition, probable causes, signs and symptoms and management, with a special note for parents.
http://www.pedisurg.com/PtEduc/NEC.htm
CDC NIP: Varicella
Factsheets on chickenpox and the vaccine that prevents it.
http://www.cdc.gov/nip/diseases/varicella/
MedlinePlus: Chickenpox
The National Institute of Health provides this directory of links to various sites and articles about chickenpox.
http://www.nlm.nih.gov/medlineplus/chickenpox.html
MedlinePlus Medical Encyclopedia: Chickenpox
Includes cause, symptoms, images, diagnosis, prognosis, prevention, and treatment.
http://www.nlm.nih.gov/medlineplus/ency/article/001592.htm
http://www.webmd.com/a-to-z-guides/understanding-chickenpox-basics
Find information and resources for Chicken Pox.
http://www.webmd.com/a-to-z-guides/understanding-chickenpox-basics
Kidshealth: Varicella (Chicken Pox)
Factsheet with signs and symptoms, prevention, diagnosis, treatment, and complications.
http://www.kidshealth.org/parent/infections/bacterial_viral/chicken_pox.html
eMedicine - Chickenpox
Article by Anthony J Papadopoulos, MD.
http://www.emedicine.com/derm/topic74.htm
MayoClinic.com - Chickenpox
Features symptoms, risk factors, complications, treatment, and prevention.
http://www.mayoclinic.com/health/chickenpox/DS00053
eMedicine Health - Chickenpox
Factsheet with cause, treatment, tests, and treatment.
http://www.emedicinehealth.com/articles/15528-1.asp
Kidsource.com - Chickenpox
Information on the Chickenpox vaccine, ask questions in the forum and find other articles.
http://www.kidsource.com/kidsource/content4/chickenpox.html
Chickenpox in Children
A discussion of the common signs and symptoms of chicken pox, treatments and how to prevent children from getting this common childhood infection.
http://www.keepkidshealthy.com/welcome/infectionsguide/chickenpox.html
Whale: Chickenpox
Information aimed at medical professionals, regarding the disease, homeopathic treatment alternatives, and possible vaccination outcomes.
http://www.whale.to/vaccines/varicella4.html
The Chicken Pox Vaccine: What Parents Need To Know
Brochure from the American Association of Pediatrics.
http://www.aap.org/family/chckpox.htm
InteliHealth: Chickenpox
Includes symptoms, diagnosis, prevention, treatment, and prognosis.
http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9704.html
Febrile Seizures
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/febrile_seizures/detail_febrile_seizures.htm
eMedicine - Febrile Seizures
Article on this common childhood disorder by William T Zempsky, MD
http://www.emedicine.com/EMERG/topic376.htm
eMedicine - Febrile Seizures
Article by Robert Baumann, MD
http://www.emedicine.com/neuro/topic134.htm
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